Families Rights Matter² — Reform HIPAA. Save Lives.
A national movement · est. Kansas City

Families have the right to save a life.

When a loved one is in mental health crisis, the law shuts the people who know them best out of the room. We are here to change that — through HIPAA reform, crisis response overhaul, and a ten-point plan to put families back at the center of care.

10
Point National Reform
1996
Year HIPAA Passed · Pre-Crisis Era
50
States We're Organizing

A privacy law written for paperwork is now costing us lives.

HIPAA was designed in 1996 to protect medical records. It was never built for psychiatric emergencies. Today it locks families out of the most critical moments of their loved ones' lives.

Families across the United States face the same wall when someone they love is in crisis. The wall is called HIPAA — and it wasn't built to hold them.

In mental health emergencies, family members are usually the first to see the signs. They know the history. They know the medications. They know what works and what doesn't. Yet current HIPAA restrictions routinely stop healthcare providers from sharing diagnosis, care plans, or intervention details with the families of adult patients — even when involvement could be the difference between recovery and tragedy.

The result is predictable. Families are left helpless. Providers work with incomplete pictures. Patients cycle through crisis holds with no continuity. And too often, we bury them.

We are calling for a reform that balances patient privacy with family involvement during emergencies. Building on the precedent of H.R. 2646, the Helping Families in Mental Health Crisis Act, this reform establishes a clear, consent-based path for information sharing when someone cannot advocate for themselves.

Families are not a threat to patient welfare. In a crisis, they are the most important resource in the room.

The 10-Point Plan to fix HIPAA and modernize crisis response.

Not politics. Policy. Each reform addresses a specific failure in the current system — and each one has been written to pass.

01
Mandatory Family Communication During Crises
HIPAA currently allows providers to share information with families but does not require it.
ReformProviders must notify and communicate with families when a loved one is in crisis, at risk, or unable to make safe decisions.
02
National HIPAA Training to End Provider Confusion
Clinicians often misunderstand HIPAA and over-restrict communication out of legal fear.
ReformRequire standardized national training so providers know exactly when family involvement is permitted and required.
03
Updated Consent Rules for Adults in Psychiatric Crisis
HIPAA treats all adults as capable decision-makers, even during psychosis or suicidal crisis.
ReformCreate an emergency exception allowing temporary family involvement when a person is clearly not in their right mind.
04
Required Safety Updates to Families
Families are often denied basic information — even whether their loved one is safe or has been admitted.
ReformHospitals must provide essential safety updates during psychiatric emergencies.
05
Duty to Consider Family Input
Families can offer information, but providers are not required to listen or document it.
ReformClinicians must document and consider family reports about danger, history, medication, and behavioral patterns.
06
Clear National Definition of "Incapacity"
HIPAA leaves "incapacity" to individual interpretation, creating inconsistent outcomes across hospitals and states.
ReformEstablish a national standard for determining incapacity during mental health crises.
07
Expand HIPAA to Cover Modern Crisis Systems
988 crisis lines, mobile crisis teams, and mental health apps often operate outside HIPAA entirely.
ReformExtend privacy and communication rules to all crisis-response systems.
08
Mandatory State Intervention After Repeated Holds
Families are left helpless when loved ones cycle through crisis holds without long-term care.
ReformAfter a defined number of holds, the state must intervene with treatment, stabilization, and long-term support.
09
Mental Health Crisis Units in Every Police Department
Police are not mental health professionals, yet they are often the first responders.
ReformRequire every police department to operate a dedicated mental health crisis unit so officers can focus on crime while trained specialists handle psychiatric emergencies.
10
Mental Health Treatment Units in All Jails and Prisons
People in crisis often end up in jails that aren't equipped to treat them — especially when hospitals are full.
ReformRequire every jail and prison to operate a mental health treatment unit to stabilize individuals, ensure continuity of care, and protect community safety.
Leon Shelmire Jr. — Founder of Families Rights Matter2
FOUNDER · KANSAS CITY, KS
LEON SHELMIRE JR.
The voice of the movement
These reforms are not about politics — they are about saving lives. Families deserve to have input, to be included, to know their loved ones are safe.
Leon Shelmire Jr. · Kansas City, KS

Leon founded Families Rights Matter2 after living the failure firsthand. The movement is built from lived experience — not theory — and is growing into a national platform for policy reform, public education, and community mobilization.

Decision makers we're speaking to.

Reform happens when lawmakers hear from the families affected. These are the offices we're engaging — tap to learn more or contact directly.

Kamala Harris

Kamala Harris

Former Vice President of the United States

Sharice Davids

Sharice Davids

U.S. House of Representatives · Kansas 3rd District

Laura Kelly

Laura Kelly

Governor of Kansas

Jasmine Crockett

Jasmine Crockett

U.S. House of Representatives · Texas

Versions & release notes.

This site is a living platform. We ship, learn, and improve.

FRM² · build log · tail -f
v3 2026.04.22 · late session · CURRENT BUILD
White-bleed fix — app-shell + forced backgrounds
  • FIXED white background showing through in E~M~P embed environments
  • Added <div class="app-shell"> wrapper — bulletproof ink canvas
  • html + body backgrounds enforced with !important
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v2 2026.04.22 · late session
Platinum Wireless rules applied — pictures, badge, menu
  • FRM² mark baked into the brand
  • Version badge placed top-right, left of 3 dots
  • 3-dot menu wired functional (About · Install · Share · Call · Donate · Version)
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v1 2026.04.22 · initial release
Platform launch — the movement goes public
  • Editorial ink-and-gold redesign
  • 10-Point Plan cards · PWA shell · press wire · action grid
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