When a loved one is in mental health crisis, the law shuts the people who know them best out of the room. We are here to change that — through HIPAA reform, crisis response overhaul, and a ten-point plan to put families back at the center of care.
HIPAA was designed in 1996 to protect medical records. It was never built for psychiatric emergencies. Today it locks families out of the most critical moments of their loved ones' lives.
Families across the United States face the same wall when someone they love is in crisis. The wall is called HIPAA — and it wasn't built to hold them.
In mental health emergencies, family members are usually the first to see the signs. They know the history. They know the medications. They know what works and what doesn't. Yet current HIPAA restrictions routinely stop healthcare providers from sharing diagnosis, care plans, or intervention details with the families of adult patients — even when involvement could be the difference between recovery and tragedy.
The result is predictable. Families are left helpless. Providers work with incomplete pictures. Patients cycle through crisis holds with no continuity. And too often, we bury them.
We are calling for a reform that balances patient privacy with family involvement during emergencies. Building on the precedent of H.R. 2646, the Helping Families in Mental Health Crisis Act, this reform establishes a clear, consent-based path for information sharing when someone cannot advocate for themselves.
Families are not a threat to patient welfare. In a crisis, they are the most important resource in the room.
Not politics. Policy. Each reform addresses a specific failure in the current system — and each one has been written to pass.
These reforms are not about politics — they are about saving lives. Families deserve to have input, to be included, to know their loved ones are safe.
Leon founded Families Rights Matter2 after living the failure firsthand. The movement is built from lived experience — not theory — and is growing into a national platform for policy reform, public education, and community mobilization.
The movement is being covered nationally. Every release is a piece of the case.
Reform happens when lawmakers hear from the families affected. These are the offices we're engaging — tap to learn more or contact directly.

Former Vice President of the United States

U.S. House of Representatives · Kansas 3rd District

Governor of Kansas

U.S. House of Representatives · Texas
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